Faces of Knowledge. Special issue in English No. 1 (2013)

The Impatient Patient 
A discussion of patient involvement in novel forms of knowledge production 
– a case study of the European Community Advisory Board on HIV/AIDS
by Tamás Bereczky

Novel forms of knowledge production and dissemination increasingly extend to the involvement of civil society. This research looks at the role of the community of people living with HIV (PLH) in biomedical research and pharmaceutical development by tracing the evolution of such involvement from anger to activism to scientific contributions. The institutional review of the European Community Advisory Board (ECAB) has examined the history, working models, relevance, and future perspectives of the organisation. Semi-structured interviews have been conducted with organisation members and stakeholders to explore the history of ECAB and its role in scientific research. The concept and role of the “expert patient” are discussed. This paper emphasises the role of expert patients and their organisations in the production of knowledge with recommendations to ease the burden on health care institutions, reduce stigmatisation and discrimination, and to add aspects of the ‘consumers’ of knowledge to the process of knowledge production. The triple-helix model of knowledge production is revisited, and the adoption of a quadruple-helix model is proposed that includes civil society (the patient community) in the process of knowledge production and distribution. On a more general level, some conclusions are drawn as to how the empowerment of patients may in turn lead to a deepening and widening of democratic processes through increased awareness of citizens of their rights. A model of transition from expert patient to empowered citizen is proposed. » Full text
Multiple Discrimination and the Quality of Jobs across Europe
by Katalin Tardos

The paper investigates the phenomenon of multiple discriminationand the quality of jobs available on the labour market in the European Union. Numerous studies have demonstrated the negative impact of discrimination on employment prospects, however only very few have investigated how discrimination relates to overall job quality. The paper analyses the significance of discrimination on multiple grounds; the grounds of discrimination that are most likely to be combined, and finally, whether there is a significant difference in employment rate and job quality among victims of single or multiple grounds discrimination. The research tested the hypothesis that victims of multiple discrimination have both a lower employment rate and, when employed, a lower overall job quality compared to those affected by no or single ground discrimination at the same educational level. To measure overall job quality of respondents, a complex index has been designed. The research evaluates data from the fifth round of the European Social Survey (ESS) conducted in 2010. Findings reinforced that victims of multiple discrimination had a lower job quality level compared to those not discriminated or discriminated on a single ground , especially at the lower and higher end of the educational continuum. Furthermore, the research revealed important methodological implications concerning the measurement of discrimination. » Full text

Justice on the Streets
The production of critical knowledge through participatory action research with homeless people in Budapest
by Éva Tessza Udvarhelyi

With knowledge and power so intimately tied together, research and documentation can easily turn into technologies of control and exclusion. While the modern state is extremely apt at counting, documenting and categorizing its residents, it is also able to enforce certain expectations towards its citizens through a request for proper documentation. In today’s Hungary, the state has a vast knowledge about people who are homeless through various forms of registration. At the same time, being properly documented is essential for homeless people to access necessary services and maintain their links to the body politic. By contrast, homeless people are rarely in a position either to get to know the state’s operations in detail or set expectations towards the state and its representatives. Justice on the Streets, a participatory action research (PAR) project undertaken by homeless and housed members of The City is for All (AVM), a homeless rights advocacy group in Budapest, represents an attempt at bridging this huge inequality in knowledge and power by documenting the behavior of the state from the perspective of street homeless people. In this paper, I use the concept of deep participation to examine the collective process of critical reflection and knowledge production in PAR. More specifically, I analyze the unfolding of deep participation in Justice on the Streets from the perspective of 1) the development of critical consciousness, 2) the dynamics of participation in a cross-class context, and 3) the deconstruction of power and inequality at both the micro and macro levels. » Full text

Workshop conference on Science and Technology Studies in Hungary
(Gólya Community Center, 3-4 January 2013)
by Gábor Szegedi

The two-day conference, organized by András Novoszáth and Márton Fabók, was sponsored by the European Association for the Study of Science and Technology. The conference was launched with a keynote lecture by Zsuzsa Gille, followed by five ‘‘tone-setting” lectures on broader topics (politics, nature, space, the body, the economy) and their possible links to STS. Two panels followed in the afternoon, and the next day there were three panel session, most panels hosting four presentations each, which added up to 45 presentations altogether. There was a colorful range of panels, from info-communication technologies to body and spirit, from gender in science to assistive technologies and disabilities. Day one finished with a discussion on STS in Hungary and abroad, and the conference had a closing summary panel and a meeting of the organizers of the STS network. » Full text
Who is thirsty for science and for what kind of science?
by Ágnes Pakot
Geambașu, Réka – Kardon, Béla – Megyesi, Boldizsár – Patakfalvi-Czirják, Ágnes (2013)
Thirst for Science?
Social conceptions of the research activity, the factors influencing career choices and the social impacts of the Researchers’ Nights. Budapest: HÉTFA Research Institute – RCISD » Full text